Families often use the Internet as a key tool to keep them informed about their child’s condition, treatments and services that might be available for their child and family and/or their legal rights. Parents often seek advice and support from online networking groups and forums and these can help shape your plans for ensuring your child and family get the support they need. You should always remember that while the Internet is a great source of information, there is a lot of information that is out of date, unreliable or incorrect.

To make the best use of this time with the therapist(s), here are some suggestions:

  • If possible, ask your doctor or one of your child’s therapists for a list of reliable and relevant websites to visit.
  • Always use more than one website to get balanced information and to check information.
  • Check the source of the information.
  • Rather than googling a topic, start with websites set up by the government or recognized institutions (e.g., universities, hospitals).
  • Check the privacy policy of the website – what information about you do they collect and if you give any personal information, what do they do with this?
  • Be careful not to believe claims or promises of miraculous cures, wonder drugs and other extreme statements, unless there is reliable proof of these claims.
  • Never treat information found on the Internet, in a book or anywhere else as medical advice.

Only a medical professional can give you medical advice after consulting with you and getting details about your child’s condition.

Some good places to start: